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Journal of Aging and Health
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Three Methods of Assessing Values for Advance Care Planning

Comparing Persons With and Without Dementia

Michele J. Karel, PhD

Veterans Affairs Boston Healthcare System and Harvard Medical School

Jennifer Moye, PhD

Veterans Affairs Boston Healthcare System and Harvard Medical School

Adam Bank, PhD

Veterans Affairs Boston Healthcare System and Harvard Medical School

Armin R. Azar, MA

Veterans Affairs Boston Healthcare System and Harvard Medical School

Advance care planning ideally includes communication about values between patients, family members, and care providers. This study examined the utility of health care values assessment tools for older adults with and without dementia. Adults aged 60 and older, with and without dementia, completed three values assessment tools—open-ended, forced-choice, and rating scale questions—and named a preferred surrogate decision maker. Responses to forced-choice items were examined at 9-month retest. Adults with and without dementia appeared equally able to respond meaningfully to questions about values regarding quality of life and health care decisions. People with dementia were generally as able as controls to respond consistently after 9 months. Although values assessment methods show promise, further item and scale development work is needed. Older adults with dementia should be included in clarifying values for advance care planning to the extent that they desire and are able.

Key Words: advance care planning • values • dementia

Journal of Aging and Health, Vol. 19, No. 1, 123-151 (2007)
DOI: 10.1177/0898264306296394
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